THE LIAM FOUNDATION

The AGAT Foundation’s donation of $10,000 in addition to ongoing contributions from other generous donators will help fund medical treatments, trials and establish genetic research at the Montreal Children’s Hospital.  These donations will help both Liam and other families affected by polg disease and other related illnesses by funding research and advancement toward a hopeful cure.  

The Montreal Children’s Hospital and the Liam Foundation will be backing a new medication in Canada for 5 children, including Liam for Polg disease. The process with Health Canada is underway and it is anticipated that the green light for its use will move forward in the next few months (July 2021). This new medication is not a cure, however will help buy some time for those affected to get additional help. 

A letter from Liam’s Father:
“In June of 2019 Liam was diagnosed with mitochondrial disease, more specifically polg disease, a genetic disorder that has caused balance and gross motor issues, epilepsy, and autism.

The mitochondrial disease diagnosis crushed our world as parents and we really haven’t been the same since. The doctors in June told us that this is a very rare disease and that there is no cure. We were told that life expectancy for Liam’s condition is 3 months to 12 years.

As Liam’s dad, I have made finding a cure my number one priority in my life. I won’t stop until a cure is found. I have met with doctors from Canada, USA, and England. After my visits with all these amazing doctors, it is apparent that research is needed. I have created the Liam Foundation and have also teamed up with the Montreal Children’s Foundation. Together we will raise funds for research and purchase any special equipment that is needed.

We need to save Liam’s life as well as the lives of other kids that have this horrible disease.

Thank you for your help and generosity.

We will beat this my little Liam. Love you buddy.”